Thursday, August 19, 2010

"Hurry Up and Wait"

We have a few new updates on our little guy Aaron. It feels like the last couple weeks have been spent rushing around and hurrying to get doctors appointments in so we have a "plan" in place for Aaron's birth (whether that is a planned c-section or natural delivery, heart surgery or transplant?) only to find out from doctors that there is no plan other than to...wait. I am such a planner and like to be in control; God is certainly teaching us about faith in HIS plan and patience through all of this!

We had several doctors appointments last week (@35 weeks along) in which we found out:
~ Little man is measuring in at approx 5 lbs and 10 oz (and still growing!). Our Doctors are all very pleased with his size since kiddos with CHD tend to be on the smaller side.

~At 30 weeks along, our echocardiogram showed that the original fistula (that had eliminated surgery as an option initially) was still nowhere to be found (a 100% God Miracle!); however, a new small fistula from the right coronary artery was developing. 

~Last week, our echocardiogram showed no significant changes that our cardiologist or the surgeons could see and they are unable to determine at this point if the new fistula will be a limitation to surgery, so the consensus is to let Aaron arrive in his own time...followed by an angiogram and then a decision to go down the path of either surgery or a transplant. We are so very blessed to be in such capable hands of all of the doctors and nurses at Children's  and we are truly thankful for our WONDERFUL cardiologist; they have all been compassionate and remarkable every step of the way!

 It is amazing how quickly time has been flying by! A few weeks ago, I felt like I had all the time in the world before Aaron's arrival and now he could be joining our family any day (although we hope he waits a while longer and grows a bit more)! We are so excited to finally meet our little guy, see who he looks like and hold him in our arms, but at the same time, I am honestly anxious and fearful for what's to come. At times, I wonder if fear and anxiety show weakness in my faith, but I've spent the past nine months bonding with this little guy, feeling every kick and hiccup and watching him squirm away form the sonographers when they're on the brink of getting "that perfect shot" they wanted on an ultrasound. God knows my heart, including my fears, hopes, anxiety and prayers...and I guess I couldn't really consider myself a mom if I wasn't worried about what's to come for our son. As ironic as it sounds, once he's in our arms, we can't protect him anymore... but we know that God has a plan and He will have His loving and healing hands around our son. All we can do is continue to pray and have faith...

"For you created my inmost being;
You knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well." 
~Psalm 139: 13-14


  1. Thanks for joining in my blog event and sharing a little about the beginning of your journey with Aaron.

    I'll be keeping all of you in my many prayers as you prepare for his birth and the plan that follows. I know it is never easy "waiting" for answers especially when it involves your child. Hang in there and trust that God has the perfect plan for Aaron already mapped out!

  2. Hello! I wanted to introduce myself as your newest "follower" :) My name is Jenny and my daughter Aly is 13 months old and has HLHS. We will be keeping your family in our thoughts and prayers as you await the birth of your special heart.

  3. I love that you've started a blog, Danielle (especially because I can't be there to see you and hear all about sweet baby Aaron). I can only imagine the conversations you've had with God and the places your heart has been... I'm sure you're stronger and even more prepared to be a mommy to this little guy. Aaron and I are both praying for your family and for Aaron's healthy arrival.

  4. I love reading about your journey with your little one. And now that Aaron has arrived, Uncle Leaf and I will so enjoy hearing about his progress. Our love and prayers are with you all. We are looking forward to meeting him soon, and seeing the Selby FAMILY! with love to you all, Candy & Lee

  5. Danielle & Dan, our very deepest sympathy & love to you both during this sad time. Thank you for posting the information about your precious little Aaron. OUr hearts hurt for you and your family, but also know that baby Aaron is home safe with Jesus. We will continue to pray for you for comfort, healing and strength. What a wonderful testimony you both have been to everyone. Love, Johnnie & Harriet


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