If you have happened upon this blog because you have received a similar diagnosis, my heart goes out to you. I'm so very sorry. But, I am glad that you are here...researching, connecting and surrounding yourself with other heart families and arming yourself with knowledge. Always remember to have HOPE; there are a lot of healthy heart kiddos out there...
Here are some resources that may be of some help if you are beginning a heart journey:
An overview of Pulmonary Atresia
Blog: Heart defects, for everyone
Fantastic Website: 1in100.org
An online support group for Hypoplastic Right Hearts: http://www.hypoplasticrighthearts.org/
Stephanie offers great resources, wisdom and advice about "the heart journey": When life hands you a broken heart...create hope
A great resource for parents and any heart defects: Heart Baby Home
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Thank you, Jessica!
About Us
We are the proud parents of Aaron Matthew, a little CHD angel that God entrusted to us for too short a time here on earth. Aaron was diagnosed with severe congenital heart disease just two days after we learned and were overjoyed that we would be welcoming a son into the world. This is our journey with Aaron, led by our faith that God has a plan for us, wherever that may lead...
Our Little Family
About Our Blog
Since Aaron's diagnosis, I know we searched for and consumed any information that we could find on CHD, particularly any similar diagnoses. Oftentimes that came in the form of other families’ blogs, providing hope, encouragement, valuable medical insight and, well, reality checks. Besides keeping family and friends updated on our journey with Aaron, hopefully this blog will continue to spread awareness of CHD as it is the most common birth defect (1 in 100) and affects far too many families and children each year. We need to keep the research going for all those little heart warriors and angels out there.
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